25
Aug

Rafting and pump supplies

I went whitewater rafting this weekend.  I spoke to my d-team in advance so I could have a solid plan for switching to injections for a day, since my last pump vacation was a bit of a disaster. This time around wasn't perfect,  but it was pretty damn good!

I disconnected from my pump and left it in a cooler in the car (along with my transmitter) after giving a bolus for half of my morning basal insulin.  We decided  to go with half because
     a) rafting is a ton of exercise (possible lows),
     b) I would be in the sun all day (again,  another trigger for lows), and
     c) On my last "pump vacation, " I went super low for a loooong time (so my full dose of basal insulin would probably cause -- you guessed it -- lows!)

I went low somewhere during the safety training. 2 bottles of juice and a banana for me, & then we were off to the boats! The rafting team had my emergency bag in their dry bag; Boyfriend and another close friend both had glucose gel packs in the pockets of their shorts, and I felt as prepared for the day as I could possibly be.

By lunch I was 15.7. Hardly surprising,  since I gobbled down around 90g of carbs to treat the low before we left... At lunch I added together the insulin I'd need for the correction,  the meal bolus, and the "missed basal" bolus, then gave 2/3 of the whole thing, and by the time we finished for the day I was back at 5.6. I think I'd call this a successful(ish) pump-free day. I've obviously got a bit of work to do to fix what happened in the morning, but I stayed safe all day and ended up with a good #, so I'm happy with it!

Of course,  whitewater rafting beat the crap out of both my sensor and infusion set site. The infusion set (big bloody mess) still worked but was extremely sore afterwards,  so it has been changed to a new location. The sensor was also pretty badly squished and abused throughout the day (and gave me a sensor error when I first reconnected it) but seems to be working fairly well again. The excess tape that I had to use to hold it down is making the whole thing feel like a big sticky glob of constantly damp and itchy grossn.ess on my side, but at least it's only 36 hours until I'm due for a new sensor.

15
Aug

Arm site

I replaced yesterday's wonky sensor...

 

Arm sensor

New sensor site

 

I've never used an arm site for either my cgm or for an infusion set, but the Medtronic rep told me in my cgm training that as far as "off-label" sites go, users have reported very good results with using their upper arms. This sensor has been on for about 12 hours,  and so far it's been pretty accurate.

 

Here's hoping it works for at least 5.5 more days!

13
Aug

Failed sensor

So...What?

 

Biiiig fail. Big, big fail.

wtf sensor? Not even close.

 

Ok, that's weird. Maybe I should wait a bit? That's only 90 minutes of weird numbers. Yeah, let's give it some more time.

 

UGH.

UGH.

 

Now 3 hours of this? Jumping from 12 with double arrows up to 5 or 6 with arrows down? I did some fingerstick testing through this, and I was gradually rising. I went from about 7 to 10 over those three hours, but verrry slowly. My real BG values were definitely nothing like what the sensor was showing me!

 

I called Medtronic  to ask if this sensor could be saved, whether by restarting it or recalibrating. The rep explained that results like this were most likely from the sensor being pulled partway out of the skin. When the sensor is pushed back, deeper into the skin, it becomes fully saturated with interstitial fluid and will give a higher BG reading. When the sensor gets pulled partway out of the skin it isn't reading as much interstitial fluid, so the sensor BG values will be low.

I waited it out and the problem continued, so I removed the sensor. The whole thing was bent, almost by 90 degrees!

 

This whole thing has been way too frustrating. I'm getting very, very sick of getting only 4-5 days of usage out of each sensor instead of the full 6 days.

 

3
Aug

CGM: My experience so far

When I started on CGM, things were going fairly well.  I was getting mostly accurate readings, and in general I had few complaints. My sensors felt ok, weren't overly irritating, and all of the alarms it gave me were for good reasons. It woke me up a few times for overnight lows, and overall I was starting to feel pretty cautiously optimistic about integrating cgm into life.

 

Lately though, I've been having some issues with my cgms. On Tuesday night I started getting "LOST SENSOR" alarms. After trying to reconnect to a sensor (one that was only 5 days old), and failing, I called Medtronic to ask what could cause an error like that. The rep told me it was most likely a transmitter battery issue, which to be honest was frustrating to hear. I charged the transmitter before starting my last sensor, so having it die after only 5 days was more than a little bit annoying. I removed the sensor and fully charged the transmitter after being told that Medtronic would replace the sensor that I had to pull out early.

 

My sensor stock was at 2, so luckily I still had enough to start a new one early. After the transmitter was charged, I tried out a new sensor...and then:

 

BLOOD EVERYWHERRRRRRRRRE.

 

SO, SO MUCH BLOOD.

 

I've only been on cgm for about 3 weeks, and in that time I had not experienced any bleeding when I inserted a sensor. None. At all.

 

This time, though? SO much blood.  I followed the cgm instructions and put pressure on the sensor, and it stopped bleeding pretty quickly. I still had the issue of dealing with the blood-soaked tape that goes under the transmitter. The blood pretty much wrecked the stickiness of the tape, so I had to clip off some of it as I couldn't get it to stick to the skin. I called Medtronic again at this point - I know it might have been an overreaction, but as I'd never had any bleeding at all, I was wondering whether all of that blood would affect the sensor performance. The rep told me she couldn't say, and that it couldn't hurt to try it out, but not to expect much from it (I'm paraphrasing. She was much more professional than that). She also told me she'd replace the sensor. That's...um? Thanks? Not really why I called, but still nice I suppose.

 

She was right about the sensor, sort of. It had about 4 days of solid use (reliable numbers, etc) before it started to fail, but when it failed it failed hard. I went to bed with good sugars, and it spent an entire night waking me up with Low Suspend alarms every 90 minutes or so. I eventually turned off the low alarms and tried to get it to shut up, but the Low Suspend alarms just kept coming. By the time I woke up I was 18.6  -- buuut my cgm was showing a nice straight line.

 

It was only off by 12...

It was only off by 12 mmol/l... ( ~216mg/dl)

 

*sigh*... not exactly the number I wanted to wake up to on my birthday!

 

I switched everything yesterday, and this time made sure to separate my cgm and infusion set. I think part of my dissatisfaction with the sites and sensor might have been that the two were very close last time around, and both felt constantly irritated. When I'm always annoyed by a site, I'm just a teensy bit more prone to overreact to things.

 

Since changing both on Saturday I've been happier...ish. My cgm still trends lower while I'm sleeping, and last night (on a freesh cgm) I still got a few false low alarms. I finally googled it today, and found that apparently Medtronic cgms are sensitive to pressure. A few sites I read (mostly diabetes forums and comments from users) said that if you're sleeping on it, the increased pressure on a sensor can cause false readings.

 

Balls!

 

I prefer to put my cgms in my back. They don't bug me there, and I find the sites to be much more comfortable (aka easier to ignore). I just started a new sensor yesterday, so I've got quite a bit of life left in it - but after this one I'm thinking of trying some new areas. I read a few good things about sensors in the top of the thigh, and I've never had issues with infusions sets there. Some users also recommended the arms, so that's another for the "maybe" list.

 

 

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