3
Sep

Another dx anniversary 

A few words for my Diabetes.
So, diabetes, there's not much to note this year. It's a Sunday; I spent most of the day cooking and doing laundry. Exciting stuff. You know all about it- you followed me around all day, just as you have for the past few decades.
I started a new sensor but was about to eat dinner, then had just eaten, then ate dessert... so by the time I checked to calibrate, I was running pretty high. Hardly surprising. You remember this, I'm sure.  After all, you were there to refuse to take my sensor calibration. "Too high," you told me. "Try again later."
I recently heard some good news about having CGM evaluated for coverage in my province. More on this later, but it could be very exciting. Who knows, diabetes-- maybe more folks in my province could be equipped with the tools and the tech that we need in order to kick you back where you belong??
Diabetes, you might have noticed that I didn't get in fights with anyone today. I didn't get rip-roaring drunk and bawl my eyes out about you, the incessant nuisance that refuses to leave me the fck alone. I didn't cave to the unhealthy habits of back in the day. I was....okay.
Maybe this is growing up? It feels like quiet resignation. A resigned sort of sadness. I might not be ripping into anyone who dares piss me off today, but I'm still feeling that deep grief that can't be paved over no matter how hard you try to ignore it. I guess this is now it is.
Diabetes, it's been 24 years. I don't speak to you directly very often, as I find it hard to stay reasonable in these conversations, but I will say this:

As ever year,
I wish.

I hope. 

I very sincerely pray that someone; some divine ruler, some masterful scientist, SOME ONE hears these dreams of mine.

I hope only one of us is left this time next year.
Yours,
Melody

3
Sep

Diabetes turns 23

Well, it's diabetes' 23rd birthday (for me, anyways). I certainly can't say it's been a happy one, but then again, none of them really are. 
BGS have been fine today. I am still here. I can be grateful for that today. Complications aside, I am still here.

3
Sep

22 years

September 3rd makes me angry.

It's not intentional, but it's a problem. Maybe.

Have you noticed I'm not too thrilled about this year's dia-versary?

Last year when my diabetes turned 21 I picked a fight on twitter with a local Doctor-slash-media-darling and his followers who were commenting on a promotion by a fast-food restaurant (Dairy Queen, I think) who was donating a percentage of ice cream sales to JDRF.
This guy is a huge proponent of balanced plant-based diets and exercise, and is (it seems/if his book sales are any indication) a beloved member of the community in my city. I followed him on twitter because my Nancy is a fan of his work, and up until a year ago, I was as well.

On Sept the 3rd of 2014 I was waiting at work for some processing to run, I scrolled through my twitter feed and saw this comment. I saw red; my vision literally clouded over and I felt blind-sided by the rage that had built swiftly and with a vengeance. I was furious -- he was essentially saying that by choosing to purchase food products from a retailer who serves sugary snacks, despite this restaurant donating part of their proceeds to JDRF, the buyer was contributing to a diabetes epidemic.

I called him out, as well as some of his followers. I spent a lot of that day trying to explain to randos on the internet how hurtful and cruel their comments were.  I think that day was the first time I realized how difficult it is to express yourself in 140 characters or less, and I'm not sure I managed to convince anyone to change their minds on the issue.

Despite this, I remain convinced that my inability to clearly articulate my argument does not make me wrong.

This year I haven't gone on any internet-rampages; rather, I found my mood sitting somewhere in the "I dare you to fuck with me" realm.
I hate this. I hate diabetes. I hate how upsetting I find it and I hate how angry it sometimes makes me. I hate how there are days where I am so frustrated with trying to stay alive that I honestly and truly believe I might just give up, just lose the ability to continue to try, consequences be damned.

It crosses my mind every time I bolus for a large meal that unless I eat, I have likely just given a lethal dose of a medication. Sometimes this balancing act feels all but impossible.

 

None of this is coming out as I want it to, but that's about the norm as far as my diabetes-related-feelings go.

Back to Top