4
Feb

My local JDRF's first "Adults with T1" meeting

This past week was my local JDRF chapter's first "Adults with Type 1" meet-up. I posted on my local JDRF's facebook group a while ago - back in November or early December - and asked whether they had any programs or meetings for adults with t1. The reply I got said that they were setting up a meeting for people who wanted to get involved with organizing all of that, so of course I said OMG YES. I attended that meeting in December, and from that mtg, plan was for everyone to email ideas for what to do in an AT1 meetup. Two people planned to set up an event, and we (the organizational team) were to send in ideas for future meetings.

Two people from that group organized a meeting at a pub downtown this past week - we got together for drinks, food, and conversation, and it was amazing. It felt so liberating to be able to turn to the person next to me and ask questions about their cgm. I actually got to see a dexcom! it was soooo cool. I  got to sit there and ask questions like "what does a cgm sensor feel like" or "how does it feel to get the overnight results / how have you been able to make changes to your insulin regime as a result of your cgm data?"

I realized about halfway through that I would probably be nowhere as comfortable having those same discussions with my close friends. Don't get me wrong - I love talking about D-supplies with my family, and love researching and reading about new devices, tools, medical research - all that cool stuff. Putting those things together is a little bit different though... There's always a little voice in the back of my head when I rave on about these things to my family and friends... It's the voice that's wondering what's going on in their heads. Are they bored? Wishing I would shut up about health stuff? Wondering why I haven't picked up on how they don't care about learning what a cgm is?

I hope I'm way off, but there's always a part of me that wonders. I didn't realize it at the time, but a few days after sitting down for food and conversation with other adults with t1, I was able to pin down the thing that I enjoyed so much: I genuinely believed that everyone else at the table was just as interetsted in these topics as I was. I could talk about overnight lows and not wonder once whether anyone was uncomfortable or waiting for the conversation to end. It was a pretty great night...

Our next "organizational team" meeting is in about 3 weeks, and the next AT1 meeting is at the end of the month. I'll report back on how it goes :).

28
Sep

Preparing for the JDRF Ride 2013

So last October I walked past an event in the lobby of the building where I work. This isn't unusual; the plaza on the main floor is huge and events are hosted there year-round. This one caught my attention though - I saw JDRF posters, so I stopped to take a look at what was going on. I saw stationary bikes spread out all over the lobby, with workout-gear-clad people stopping by registration tables, and teams of enthusiastic individuals cheering on their colleagues and friends who were riding the stationary bikes. Naturally, I was intrigued...

I looked it up few days later and found out all about the JDRF ride, and decided to try to get involved next time it came around. Fast-forward to a few weeks ago, I realized that this year's Ride was fast approaching and I should start planning 😀

I called my local JDRF office to ask whether individuals can participate without a team, and was told that they don't recommend it. The rep said that someone from my workplace was involved with the JDRF though, and offered to approach this individual for me and ask whether he would want to join me. To sum up what would otherwise be a long (and fairly boring) story, I spoke to a few people and have three "probablys" who have told me that they will ride with me on a team this year. I created my workplace's team (I'm a team capitain!) a few days ago, and now I'm just waiting for my coworkers to register so I'm not the only team member :P.

I'm sort of excited, although there's definitely a part of me that worries that, since my coworkers haven't actually registered yet, they might change their minds and decide not to participate, so I would be biking the whole hour on my own... & I'm semi-fit but I still think that I would find that pretty challenging. I also haven't started telling the rest of the office that I'm riding, since I feel like it's strange to call it a "workplace team" when I'm the only one registered. I want my future (hopefully) teammates to sign up online so I can start passing the team page along to others in my workplace!


 

26
Sep

a1c results

The last few days have been crazy! (good-crazy....)

 

I spent lunch on Friday at the hospital getting my bloodwork for the a1c test that my healthcare team said I need in order to go on a pump. I emailed the nurse on my D-team and asked if she could fwd me the result when she received it, and was absolutely floored when she sent me the number on Monday. I was expecting something close to what it had been last time. I've been working harder, but I also had a few rough patches over the summer so overall I figured I would end up about the same - but I was shocked to get my result and see that my a1c has dropped by 0.9% since my last test in June. 0.9%!! 😀

I'm also participating in the JDRF Ride this October! I'm super excited to be able to join an event like this.  There's a big story behind how my team came together is coming together, but that's a post for another day!

 

 

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